TrinnyLeslie
Auto Immune Disease:
Scleroderma
Scleroderma, or systemic sclerosis,
is a chronic connective tissue disease generally classified
as one of the autoimmune rheumatic diseases.
The word “scleroderma” comes from two Greek words:
“sclero” meaning hard, and “derma” meaning skin.
Hardening of the skin is one of the most visible manifestations of the disease.
The disease has been called “progressive systemic sclerosis,” but the use of that term has been discouraged since it has been found that scleroderma is not necessarily progressive. The disease may take several forms which will be explained later. There is also much variability among patients.
It is not contagious, not curable but treatable.
The exact cause or causes of scleroderma are still unknown, but scientists and medical investigators in a wide variety of fields are working hard to make those determinations. It is known that scleroderma involves overproduction of collagen.
It is my honor to introduce: Leslie & Alex
Leslie is 36 years old and is a stay at home mom of three boys.
“I am a mentor for domestic violence victims and
I am currently advocating for Autism [as her youngest son, Benjamin, has autism].
I am married to a wonderful man Alexander and he is an accountant,
a third degree black belt martial artist and finish written a book name Alex Dreams.
I love music, dance and helping others.”
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Thank you all for your continued prayers and support!
– 01/09/08 — E-mail received from Leslie: See updated information on Leslie’s health and how she is weathering this season with God’s strength!
– 11/10/07 — E-mail received from Leslie:
Leslie was given a flu shot to protect her through this season… and ended up in the hospital – information posted.
— 10/05/07 —
Support is Important; Especially From Your Family & Friends
“Yesterday was a real bad day for me, I was going through my ailments of my diseases. I saw my family husband and 2 sons falling apart in front of me. It got to the point that I broke down and cred, with that my husband stop what he was doing, and kneel at the side of our bed. I told him that I am working hard on fighting my diseases and needed their strength and support. If everyone is not on the same line in winning this battle, I will not survive.
This weekend our family is going to over to have a meeting on dealing with everything and come up with a better plan to save our family. Without my family and friends support I do not think I can fight this on my own.”
Leslie, Alex, Jerome, Daniel, and Benjamin are strong… they will make a plan and fight together, with God’s strength, courage, and peace to walk this journey. Thank you all for your continued prayers – more updates to come when I receive more information.
— 10/03/07 —
God is Good
“Today my family came over and it was the most uplifting, spiritual day I had; they cooked, prayed and sang. I felt a weight on my chest come off and refresh.
Today I claim my healing from the lord, I’m no longer going to feel like giving up, despair during my pains and suffering. The Lord is working on healing me through faith, family, friends, doctors, medicine and many more. I have seen my blessings coming, today my pulmonary doctor called and said that my results came back normal (Thank God).
I have so much to do on this earth with your help and everyone else, I can share the message and help other’s in need. I started applying some of things my aunt told me to do with Benjamin, you know that he have been having problems since he’s out of school. So I wanted him to go sleep early because he have been up since 6:30 am, and yet he was fighting me not to go to sleep. I said to him that the Lord want him to rest, while listening to some Gospel music, he kept saying no to me, then after I took off the television. He finally settle down and fell asleep in 10 minutes. It’s 8:13 pm and he is still sleeping, now I am relaxing and at some peace. God is great. I thank God sending you in my life to lift me up and will always.
Tomorrow is my doctor’s appointment with the primary care physician and still will celebrate because I am on the road to healing. No tears, no pity, just celebration of life and living. Although I am only human going through pains, getting use to my new life will take some time. I guess you can say I am going through a transition in my life to get ready to do great things.”
— 10/02/07 —
Leslie’s Visit to the Pulmonary doctor
— 9/29/07 —
Leslie’s youngest son has autism… and following is a note from her:
I See the Light in my Son’s Eyes
“Since I have been going through crisis one after the next, I started paying more and more attention to my son Benjamin. It’s just that when it takes something like my health condition to slow me down, you start noticing things. My son is getting better, he is speaking more, looking into my eyes and smiling. He is becoming independent, doing things on his own (brushing teeth, trying to dress on his own and cleaning up). To hear words coming out [of] my son more everyday, it gives me courage and peace, knowing he’ll be alright. Nothing like autism will keep down, he’s going to beat this with our help. I see my son’s light in his eyes and I know he’s okay.”
September Updates can be found posted here – as in the future we are posting information and linking here so that people can receive the updates and not have to duplicate information twice! Thank you for your understanding.
—– 8/23/07 —–
Leslie has been ill for about ten months. Leslie finally was diagnosed three weeks ago with an autoimmune disease call Scleroderma. She had lost a lot of weight and has stomach problems. Leslie has also been diagnosed with skin discoloration call Vitilago, and have muscle joint pains that limit her to do a lot of things.She cannot stay in any places with air conditioner because she get’s cold very fast and her hands end up turning blue. Where ever she goes, she carries a coat and gloves with her – especially to the grocery store which is a major task itself.
—– 8/14/07 —–
Is it Lupus? See posted information.
—– 8/2/07 —–
Leslie has been diagnosed with Scleroderma – an auto immune disease that attacks your muscles and skin – by the Rheumatologist. Following is a site regarding this disorder: http://en.wikipedia.org/wiki/Scleroderma
—– 7/25/07 —–
I praise the Lord today for giving Leslie positive answers to test results, the lymphoma diagnosis was a false positive! I know this is frustrating, because now we’re back at square one trying to figure out what is wrong… continue to work with her doctor’s Father – guiding them to the right diagnoses and treatment! The oncologist has taken more blood for testing and noted that her blood was abnormal – cloudy. There is no explanation as to what or why her blood is this way. A bone marrow biopsy was also performed; test result will be back next week on that.
—– 7/18/07 ——
See posted information.
—– 7/5/07 —–
PET Scan leads to diagnoses of T-cell Lymphoma… more information
—— ——
Many visits to the doctor’s & they still cannot tell Leslie what is wrong with her L
—– 10/15/06 —–
Initial symptoms stomach cramps and diarrhea.
Please lift Leslie and her family up in prayers.
All comments, notes, information and prayers posted
will be seen by Leslie as she has access to moderate comments.
We greatly appreciate your time, consideration, prayers,
and help in this matter.
Please subscribe me to your writings if you do such a thing….I would like to know how you are doing!
You have been subscribed! Thank you for your continued support and prayers.
God Bless, Heather
(on behalf of Leslie)
God bless you, Leslie! My heart goes out to you as you deal with this awful disease. My prayers are with you and your family. I pray for God’s blessings, comfort and healing.
Please sub me for updates.
Thank you.
xoxo Patti
Hello Sharon and Patti,
Thank you for your prayer’s and support. God Bless you both on reaching out. My wonderful friend Heather had set up all of this for me. I love everything she has done and doing, to help me during my trials and tribulations. I will keep you inform about my updates on my health. I need all the prayer’s I can get to beat this disease.
Thank you and God Bless you.
I found your site on technorati and read a few of your other posts. Keep up the good work. I just added your RSS feed to my Google News Reader. Looking forward to reading more from you down the road!